Thursday, June 4, 2009

Tidewater Komen Race For The Cure

For the fourth year in a row, I have accepted the challenge to raise funds to support the Tidewater Affiliate of Susan G. Komen for the Cure in its efforts to end breast cancer forever,which a woman has a 1 in 8 chance of developing in her lifetime. I will also take part in the Komen Tidewater Race for the Cure as part
of this program.

Please help support me in this important project by contributing
generously to the Susan G. Komen for the Cure. Your tax-deductible
contribution will fund services in the Tidewater and Southeast
Virginia area that include education, screening, treatment and patient
support.. It is faster and easier than ever to support this great
cause - you can make your donation online by simply clicking on the
link here: http://www.info-komen.org/goto/raceforginni

Whatever you can give will help...it all adds up!
I greatly appreciate your support and will keep you posted on my
progress.

Sincerely,

Karen West

Wednesday, June 3, 2009

Trace's Journey site news

For several years now, I have been keeping my sister's website www.tracesjourney.com updated for her. She asked me to take it over about 2 years before she passed. She would always keep me up to date with the content that she wanted added to the site.

Recently, I felt moved to take the site to a new direction. I really believe it was her inspiring me.

After meeting so many survivors and new patients with different concerns, I decided it was time to address questions and post helpful links on Ginni's site for ALL cancer survivors. I am hoping to receive input from health care professionals and those in the health insurance field. I am collecting information from reliable sources for those in need. There are some who are uninsured and underinsured who are frightened and need to know where to turn. There are others with family history and symptoms who are unable to get an appointment quickly because of the influx of patients in doctor's offices due to influenza, and they're stressing. There are others who have been diagnosed and are being treated, but are going through depressive periods and "chemo-brain". These are just a few areas of concern.

If anyone knows of links to helpful websites, please feel free to share them with me here, or email karen@tracesjourney.com. If you are in the healthcare field, I would love any information you can share about cancer, research, questions for the physician, etc. From survivors, I would really love to hear from you. What were your concerns when you were first diagnosed? How did you handle the situation? Your experience could help someone else in their time of need. At www.tracesjourney.com, there is an area for survivors to begin their own blog and you may feel free to use it. Anything you can share about your experience and how you are recovering can be very beneficial.

Trace's Journey is also on Twitter. Follow us at www.twitter.com/TracesJourney

My brother Ken and I are in the process of reworking the site. Whatever suggestions you can offer for content that would help those battling cancer and their caregivers is most gratefully appreciated.

Thank you so MUCH!

Here's to doing our part to raise awareness, and help end cancer forever...

Karen

Tuesday, April 14, 2009

www.thatsucks.net

Tomorrow, April 15th, is National "That Sucks" Day. It always falls on Tax Day. Tonight, I'm claiming this "That Sucks" Eve. Having a sucky evening. Got a headache and I'm not sure if it's all that pollen or just stress. Even though I don't know what the heck I'd be stressing about. I don't feel any stress.
Oh yeah. I take that back. Just bought a black car and besides the pollen, a Condor flew over and did his bidness all over the hood! And it rained. So it's now runny pollen and Condor poo. Sigh. Maybe that's why I got this sucky headache. Tried taking Tylenol, but that sucked. Didn't work at all. Still throbbin'. Wondering if a pot of coffee and a bag of Oreos would help? Nah, that would suck. I'd be up all night and I can't do that.

Anyway, I got a headache and it sucks...

But my hair looks cute.

So there's an upside to this story.

Going to bed now.

Hope you have an unsucky Tax Day.

Just thinking out loud, (and that hurts!)

Karen

Tuesday, April 7, 2009

"Minute 6"

Tomorrow marks the 4 year anniversary of Ginni's passing. Somehow, it only feels as though it was a couple of months ago. Around this time of year, I have a minor little meltdown. It still hurts. I know some wish I would get over myself, but that's not going to happen they way they expect it to. I have to do it my own way. Ginni was a major part of my life. There were days when Ginni was my backbone when I freaked out over insignificant dramas. And there were days when I held her up when she took her "5 minute cry." And I now use her "minute 6" tool to get through those meltdowns. Let me explain.

Ginni told me that I was allowed to mourn for 5 minutes...and on minute six, I needed to get over myself. It didn't matter how many 5 minute intervals I took...just as long as I took the sixth minute to look at the blessings that I do have.

Today started out particularly rough for me. Four years ago today, I rushed Ginni to Portsmouth Naval Hospital in a last ditch effort to save her life. When we're in situations where we have no control, we do unexplainable things in order to get the ball back in our court. People will stare and think we've totally lost our minds. Example, you're on an airplane and you're frightened. You don't go to sleep because you believe the pilot may need your help if there's a crisis. Yeah, that mentality. Funny, huh?

I took her to the hospital that day and told every medical professional there that we had to go back to National Institutes of Health for our stem cell trial because she was too weak for the surgery and will have to continue when she feels better. (NIH actually sent us home so she could be with her family on her last days.) I told them all that Ginni just needed to be hydrated or something. They humored me and they took her back to examine her. It wasn't long before I was paid a visit by several doctors to give me the devastating truth. One I knew already, but one I wasn't ready to accept. I had to let her go. At 1:50 am the following morning, she opened her eyes to heaven and then closed them for the last time.

Today, I'm thinking about the 5 minute rule, and on the sixth minute I count the blessings. I remember a week before Ginni died, we were visited by family and friends. Ginni was asked what she had done over the years that she hadn't seen these people. She said, "I got to travel to beautiful places in the world like Germany. I had three beautiful children. I went to college after I was diagnosed with breast cancer and got me a little degree...and worked in family law. I have done so much in my little life and I am grateful."

I think about that day and reflect on all the wonderful things that I have done in my "little" life too. If I were to leave this earth tomorrow, I would know that I too had done so many things in my own "little" life. I learned to scuba dive and dove shipwrecks in the graveyard of the Atlantic. I learned to ride a motorcycle and rode my bike to so many beautiful places. I've met so many people and celebrities...and some are still very good friends. I learned to dance for the local Dancing With Our Stars event and had so much fun, continued to take lessons. I gave my sister my stem cells. I got to be part of a clinical trial at National Institutes of Health. I got to be part of the healing process! I helped raise money for various cancer charities and have met so many wonderful survivors who benefit from the research...and their positive outlook on life had helped me become a stronger and better person. I have written two books to benefit the cause. I have FOUR gorgeous daughters and a great husband. Awesome grandchildren. A loving dog and cat who worship me whenever they see me.

So yes, If today were my last day on earth, I can honestly say that I've had a full little life. And for that, I am so grateful and blessed.

This post was my "minute 6." Thank you Ginni for leaving me with that tool to help me through the tough times. I love you.


Karen

Friday, March 6, 2009

Aww shucks. It was nothin' but dumb luck.

I thought I had Mercury in Retrograde as an excuse for this weird week, but I just checked and that doesn't happen again til May.

Still, it was a weird week for stuff. First of all, SNOW in Hampton Roads on the second day of March. Well, that messed us all up. And I'm just like most everybody out there and I don't wanna drive in that mess. So, I had somebody else drive me. Somebody who has experience with snow storms in the Northern parts of these here United States. Yeah, I'm a chicken. But I got to the job okay. Can't say much for a lot of other folks. There were piles of torn up cars on interstate 64...there was even one that was upside down! Anyway, it took nearly 3 hours to get in that morning and nearly 2 hours to get home. Next day, it took me 2 hours to get to work and 2 to get home. No more snow on the ground. The same for Wednesday and Thursday. I did NOT understand that one bit! Usually, at the time I commute, there may be a backup about once or twice a week. NOT every day! So, it was just plumb weird. I did notice that there were big chunks of ice on the road inside the Hampton Roads Bridge Tunnel for several days in a row. I know they keep that tunnel pretty clean, so I'm assuming that this may be ice debris from our cars and trucks. Ice chunks flying from vehicles is probably what caused most of the wrecks inside the tunnel this week. We all should really do our part to make sure that we don't have that stuff on our cars before we take off on our commute. Every little bit helps, ya know?

Tammy had a weird time too. A couple of days ago, she had to go to Portsmouth Naval Hospital to get a Neupogen shot. For those who don't know, Tammy is a cancer survivor. She came down with this rotten flu that's been going around, and she had to do what was necessary to take care of herself. Her immune system is compromised enough, she didn't need to try to fight this cold if her body wasn't going to help her out. Well, TWO vehicles gave her trouble. The battery died in her car so she took her mother's, which ended up flashing the "check engine" light for one reason or another...and started acting all funky and stuff. Good news is, she got to her destination. And today, she's feeling a little better. Back to her crazy old self. I know. I talked to her this morning and she's ready to kick my butt if I don't pick her up and take her to get a Starbucks soon. I'm trying to get over the flu myself, so I won't be able to defend myself. I guess I'll pick her up tomorrow for coffee. Sheesh. Anyway, I'm happy she's feeling better.

Anyway, long story short, the planets aren't lined up all funny, so all the crazy stuff was just chance. And a gentle reminder to take a deep breath...and practice patience. None of this stuff was life altering. Not worth the extra worry that ends up being taxing on the body. It's also a reminder to be more conscientious about our vehicles!

Choose your battles wisely, and save your energy for the REAL war. (Thank you Ginni)

By the way, I really don't believe in that "Mercury In Retrograde" thingy. It might be true, I don't know. But yeah, it's fun to think about when things look weirder than usual.

Wednesday, March 4, 2009

Potty Talk...

For years, there has been a general debate in my world about the strangest topics dealing with the family bathroom. We can't seem to all agree on it, so we agree to disagree.

Let's start with topic one - Toilet Paper: Over? Or under? My husband and I agree that the toilet paper should feed OVER. GOOD! Because I'd have to divorce him. I'd hate to have to explain that in divorce court. My grandparents? Well, I don't know how we grew up with them. They prefer theirs to feed UNDER. My sis Ginni used to go in all of their bathrooms and flip the TP around. Whenever Gramma came out of the potty, she was fit to be tied. I don't think my Granddaddy really minded. Just so long as there was toilet paper and he didn't have to replace the roll. My best friend Tammy? 99 percent of the time, she doesn't even put the TP on the roll. I guess she just wants to avoid conflict. Odd. I've never known her to be a big chicken. So anyway, which way do you prefer? Over? Or under? Don't say that UNDER is the proper way to hang the toilet paper, because I can guarantee you that there will be a big discussion going on here. Unless you don't mind debates, then let 'er rip...uh, the debate, that is.

Topic two: Reading in the powder room. I have TWO friends who feel strongly about this. (I can't believe it!) Neither one of them believe in reading in the potty. Not at ALL. No matter HOW long you plan to stay in there. One of my friends says that it ain't natural. I say, "whut?" Not even the back of a shampoo bottle? Nope. He claims that you should do your bidness and get the heck out....and for nearly 30 minutes, he stood on his soapbox about why one should not read in the potty. I don't remember a danged thing he said. But if I had to guess why he was so hotheaded about the subject, I'd say that he was raised in a houseful of sisters and only one bathroom. My other friend who doesn't believe in reading in the potty just said, "I don't read in the bathroom", and that's it. She didn't bore us with the details. Lord, I love her. But I don't agree with her. I mean, after all...





...even Storm Troopers read in the loo.


And that's good enough for me.


Just thinking out loud. Until next time...


Karen

Tuesday, March 3, 2009

A new day...

It's been a few days since I blogged my feelings about my experience at one particular emergency room. I know it's not a popular opinion. It was borderline controversial. I rarely get involved with controversial subjects. I don't even like to talk politics with friends, family or anybody! But sometimes you just have to stand up for what's right. I know this post has ticked off a couple of people, but that's not going to deter me from speaking up about it. And I hope that because I did, I made a positive difference.

Let me clear up a few things. I do not have a problem with medical professionals at all. If you know me, then you know that I admire them. I work close with several, and I respect them. My problem is this: I've had TWO bad experiences at ONE particular ER. Front desk only. I had only been there twice and both times the experience was deplorable. What set me off was the two women who worked the front desk when I arrived two weeks ago. I never made it to triage...heck, Ginni didn't even make it to triage, so I have no opinion or experience with any other part of that department. I walked out once the two tried to push me off on each other. This happened right in front of me! Like I wasn't even there! I knew I was in trouble, especially when neither would make eye contact with me. I walked out the best I could. I probably looked drunk, and they probably assumed that I was. And they both let me go, just like that. I didn't see whether either one of them even looked up. But my guess is, probably not. If my husband would have known which hospital I was going to after our experience with Ginni, he would have never let me go there. I had assumed that this was something that rarely happened, so the previous experience didn't even cross my mind. Besides, I was in so much pain, I had to get to the closest one. Maybe this was God's way of saying that something is still not right with that place and it was time to speak out. This went beyond disturbing when one of our posters here had a problem at the same hospital. I know, because she emailed her experience to me with the name of the hospital. She too was told to go there by her doctor. She never made it to triage either. She went to another hospital and was hospitalized for three days.

I am very grateful to the woman who took over the front desk there by the time my husband arrived to ask for the names of the women. She knew what happened and was genuinely concerned. She offered to help, but my husband had already taken me elsewhere. She gave my husband the names and the hotline number. I am grateful to the woman from the hotline who called my husband back. I just found out that I met her at the Relay for Life last year. Great lady.

The lady at the front desk at the ER that eventually took care of me was nothing but respectful and helpful. Not just to me, but to everyone. Matter of fact, I took my daughter to that same ER a couple of months ago. She had broken her leg in two places. We had to wait a little bit, but the lady working the front desk was even-tempered, helpful and got the job done. There was only one of her and nearly a full house. She was there when I arrived two weeks ago. When she saw the woman with messy hair, no make-up, sweats and a long ratty coat come in complaining of chest pains, she didn't see somebody coming in for a "free ride", she immediately went and got a nurse to put me on an EKG. It was done, over. She was already on to the next patient. She did not judge me when I walked in the door and for that, I'm grateful.

Therefore, I cannot agree with this statement from the first anonymous poster,

The unfortunate part is that the ER has grown a tolerance to suffering since nearly EVERY PERSON who presents reports symptoms as if they were on death's door, as if to drum up sympaty or a sense of urgency from the hospital staff.


Those first words, "grown a tolerance to suffering" floored me. This kind of thinking can completely wipe away the hope of anyone who enters ER requiring care. But I feel safe to say that this is NOT the attitude of everybody who works in ER, so the person who wrote this CANNOT speak for ALL.

My husband did NOT detect that attitude at all with the woman who took over the front desk at the hospital in question. And I surely didn't see that with the woman who worked at the second hospital. She treated everyone with respect.

In conclusion, my advice to the first two posters and the two women at the front desk of Hospital A is this: Do NOT have a preconceived notion of what the next patient is like, otherwise, that patient's family may have grounds for a lawsuit.

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