Sunday, January 31, 2010

I need to cry for a bit...feel free to ignore my rant...

I need a thyroid doctor who listens to me. I don't feel well, and it has gone on long enough. I've read about so many people who have found doctors who are willing to work with the patient to get the right combination of medications, lifestyle and supplement adjustments to get them well faster. I'm dealing with the same old thing that hasn't worked for decades. Prescribed a synthetic T4 for the fourth time now, and I'm just over this. Not one of the many doctors I have paid want to try anything different.

I've had several episodes of atrial fibrillation. My heart is fine. Numerous expensive and uncomfortable tests confirm that. One doc says it's thyroid disease fueled. Another says it's anxiety...and a third says it's allergy related. Because of this problem, no one will consider me for T3 replacement. Be patient...give it time, they say. It's been way over a year and I say I've been the lab rat for all of the so-called "tried and true" therapies and clearly they are NOT working. This is not fair.

I've had sensitivities to Levothyroxine three times now. I'm on a low dose of the brand name Synthroid to see if that will make a difference. I'm still sick. I want to exercise, but it makes me sick to do so. This makes me sad. I want be active! I have the will, but I cannot get physically ill because of my intolerance to exercise. (Another symptom of hypothyroidism.)

I eat only whole foods now. I drink only water and the occasional chamomile tea. I don't drink, quit smoking...I take whole food multi-vitamins. I've been doing this for awhile...and as I said earlier, I'm still sick.

I'm tired of reading websites about patients who have found an open minded doctor to help them heal. Frankly, in this large area that I live in, there isn't one within a hundred miles of me who will take my insurance. Those docs are way out of my price range. I'm jealous. If Mary Shomon is such the patient activist, come to MY area! Unless they're wealthy, our thyroid patients are suffering. And specialists are a dying breed.

I've read every book cover to cover and have tossed them out of frustration. I can stand up, be proactive, put my foot down, cry my eyes out to ALL of my docs and nothing. I feel like I'm branded as a complainer. I was good in the beginning, trust me. I came in with my symptoms and looked for help. I was given help...I've been given the same OLD help. After a year of my suffering and a year of the old-school thyroid treatment, you'd think someone would want to explore another avenue?

I want all of my money back.

I'm done crying now. Maybe venting here will help me find some newfound courage to continue to kick thyroid disease ass. I don't know.

Until next time,